Chris was formally diagnosed with ALS May 2nd, 2016. Upon the devastating news of his diagnosis, in typical Chris fashion, he wanted to fight back against ALS and strike it out. He and his family realized that there was a critical need for more treatments for people battling ALS like himself.
After talking with his brother-in-law, Dr. David Fajgenbaum, Chris realized the importance of looking at FDA approved drugs that cross the blood brain barrier, with intention of repurposing them for ALS. Time is critical with ALS. By researching and repurposing FDA approved drugs, we can find the best drugs to try immediately, as opposed to waiting 5-15 years for new targeted therapeutics to be FDA approved.
We discovered Project ALS while researching non-profits to get involved with. Shortly after, we met with Valerie and Meredith Estess in NYC, and over brunch realized that this would be the beginning of a special partnership and friendship. Their motivation, knowledge of ALS, and passion to find a cure partnered exactly with what Chris and Gena want to do to help find more treatments for ALS and one day a cure.